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Register with us to help us monitor clinical outcomes in competitive athletes diagnosed with heart conditions, especially those at risk of sudden death.
If you would like some more information before registering please contact us.
Register Patient/Athlete
Register with us to help us monitor clinical outcomes in competitive athletes diagnosed with heart conditions, especially those at risk of sudden death.
If you would like some more information before registering please contact us.
REGISTER WITH ORCCA.
JOIN THE STUDY.
Outcomes Registry for Cardiac Conditions in Athletes (ORCCA)
For questions, potential participants, or to learn more, please fill out this form. Click the REGISTER button to add yourself or a patient/athlete to the ORCCA study.
HELP US TO MONITOR CLINICAL OUTCOMES IN COMPETITIVE ATHLETES DIAGNOSED WITH HEART CONDITIONS AT RISK OF SUDDEN DEATH
ABOUT THE STUDY
The ORCCA study aims to monitor clinical outcomes in athletes diagnosed with cardiac conditions at risk for sudden death.
Sudden cardiac arrest (SCA) is the leading cause of sudden death in competitive athletes during sports and exercise. However, the natural history and risk profile of cardiac disorders among athletes is incompletely understood.
The collection of more complete outcomes data will improve management of athletes diagnosed with a cardiac condition, inform safe sports participation, and delineate the downstream impact of pre-participation cardiovascular screening programs. This study will examine the shared decision-making process and monitor cardiovascular outcomes, sports and physical activity levels, mental health, and quality of life in athletes with cardiac conditions.
The ORCCA study is supported by the American Medical Society for Sports Medicine (AMSSM) and the American Heart Association (AHA).
PRINCIPAL INVESTIGATORS
Jonathan A. Drezner, MD
Dr. Jonathan Drezner is a Professor in the Department of Family Medicine and Director of the UW Medicine Center for Sports Cardiology at the University of Washington (Seattle, WA – USA). He serves as Editor-in-Chief of the British Journal of Sports Medicine, and he is Team Physician for the Seattle Seahawks (NFL), OL Reign (NWSL), and the University of Washington. Dr. Drezner is past-President of the American Medical Society for Sports Medicine (2012-13) and Director of the Division for Cardiac Injury in Sport for the National Center for Catastrophic Sports Injury Research. Dr. Drezner has dedicated his career to the prevention of sudden cardiac arrest and death (SCA/D) in young athletes and the development of effective models for prevention. His primary research focuses on the incidence and etiology of SCA/D, cardiovascular screening and ECG interpretation in athletes, and emergency response planning and the use of automated external defibrillators (AEDs) in the school and athletic settings.
Kimberly G. Harmon, MD
Dr. Harmon is a Professor in the Departments of Family Medicine and Orthopaedics and Sports Medicine and Section Head of the Sports Medicine Section at the University of Washington. She is the Research Development Director for the Pac-12 Conference and the Head Football Physician for the University of Washington. She is a Past-President of the American Medical Society for Sports Medicine (2009-2010) and Past-Chair of the Pac-12 Student Athlete Health and Well-Being Board (2017-2019). Dr. Harmon’s research interest include the prevention of sudden cardiac arrest and death and she has authored paradigm-changing papers on the incidence and etiology of SCA/D in college athletes. Other research interests include concussion, sickle cell trait, and orthobiologics.
Aaron Baggish, MD
Dr. Aaron L. Baggish is the founder and Director of the Cardiovascular Performance Program (CPP) at the Massachusetts General Hospital in Boston, MA, USA, the United States’ first program designed to provide comprehensive cardiovascular care to athletes. Dr. Baggish is an Associate Professor of Medicine at Harvard Medical School and serves as medical director for the BAA Boston Marathon and cardiologist/team physician for US Soccer, US Rowing, the US Olympic Training Centers, the New England Patriots, the Boston Bruins, the New England Revolution, and numerous colleges and universities. His research interests include exercise-induced cardiac remodeling, pre-participation screening / sudden death prevention, exercise dose and clinical outcomes, and the cardiovascular effects of anabolic steroid use. He currently maintains independent research funding from the National Institutes of Health, the American Heart Association, the NFL Players Association, the Department of Defense, and the American Medical Society for Sports Medicine.
INVESTIGATORS
Bradley J. Petek, MD
Nathaniel Moulson, MD
Stephanie Kliethermes, PhD
Timothy W. Churchill, MD
Dr Timothy Churchill is an Instructor at Harvard Medical School and the Massachusetts General Hospital and a member of the Cardiovascular Performance Program (CPP), a clinical and research program focused on the intersection of exercise, sports, and heart disease. His clinical work within the CPP centers on cardiovascular evaluation and care of athletes and highly active individuals with cardiovascular disease. His research focuses on better understanding the impact of exercise and sport on the cardiovascular system and how this knowledge may help reduce the cardiovascular risk associated with all levels of sports and exercise participation.
Manesh Patel, MD
Manesh R. Patel, MD, is the Distinguished Richard S. Stack Professor, Chief of the Division of Cardiology, and Co-Director of the Duke Heart Center. He is also a faculty member and investigator at the Duke Clinical Research Institute (DCRI). He is involved in several clinical trials involving patients with cardiovascular disease and in cardiac imaging. At the Duke Heart Center, Dr Patel is leading an effort to redesign the delivery of care for cardiovascular patients in a learning health system with the specified aim of measuring and providing individualized, patient centered, innovative, and efficient care. He is currently Chair of the American Heart Association Scientific Sessions.
Rachel Lampert, MD
Dr Lampert went to medical school at Vanderbilt, then did residency and chief residency at Bellevue/NYU. She did cardiology and electrophysiology fellowship at Yale, where she is currently the Robert Berliner Professor of Medicine in Cardiology/Electrophysiology, and Director of Sports Cardiology. Clinically, her focus is on care of athletes with potentially arrhythmogenic cardiovascular disorders and identification through ECG screening. She is involved with the Heart Rhythm Society, American College of Cardiology, and American Heart Associations, serving on committees and editorial boards. Her research interests include the impact of sports and exercise on arrhythmias in athletes with cardiovascular disease, and decision-making for these athletes.
Jonathan Kim, MD MSc FACC
Dr. Kim is an Associate Professor of Medicine and Chief of Sports Cardiology in the Division of Cardiology and Orthopedics at Emory University School of Medicine and additionally holds an adjunct Professorship in the School of Applied Physiology at the Georgia Institute of Technology. He received his Bachelor of Science at Emory and was a Fulbright Scholar before attending Vanderbilt Medical School. He completed his residency in Internal Medicine & Pediatrics at Massachusetts General Hospital and cardiology fellowship at Emory (Dr. Kim was chief fellow at Emory 2013-14). In addition to his clinical role, Dr. Kim conducts NIH-funded sports cardiology research at Emory. He is the Team Cardiologist for the Atlanta Falcons, Braves, Hawks, and Dream, and for Sports Medicine at Emory and Georgia Tech. Dr. Kim is a member of the NBA Cardiac Advisory Committee, NFL Cardiovascular Task Force, and is a consultant for Major League Baseball and the Southeastern Conference (SEC). He is the Co-Medical Director for the AJC Peachtree Road Race in Atlanta, GA. Dr. Kim is the Chair-Elect for the American College of Cardiology’s Sports and Exercise Cardiology Council.
Dermot Phelan, MD PhD
Dermot Phelan MD PhD is the Director of the Sports Cardiology Center, Medical Director of Cardiovascular Imaging, and Co-Director of the Hypertrophic Cardiomyopathy Center at Atrium Health, Sanger Heart & Vascular Institute, Charlotte, North Carolina. Dr Phelan is the team cardiologist for the Carolina Panthers and Charlotte Football Club and serves as the Cardiology Consultant to the National Football League (NFL) Scouting Combine and the Major League Baseball Scouting Combine. He serves on the Cardiac Screening Advisory Committees for both the NFL and the National Basketball Association (NBA). His team at SHVI have partnered with the NBA to perform quality assurance on all echocardiograms performed throughout the NBA. As a member of the American Society of Echocardiography Competitive Athlete Writing Group, he has helped write the recommendations for how to best evaluate the heart of the athlete and is the editor of a new book on Sports Cardiology entitled “Care of the Athletic Heart; From the Clinic to the Sidelines”. He serves as a member of the American College of Cardiology (ACC) Sports and Exercise Cardiology Leadership Council and serves as Director of the ACC national Sports Cardiology Conference, The Care of the Athletic Heart, in 2022 and 2023.
Sharlene Day, MD
Sharlene M. Day, MD earned her B.S from the Massachusetts Institute of Technology in 1991 and her MD from New York University School of Medicine in 1995. She completed her internal medicine residency and cardiovascular medicine fellowship at the University of Michigan, followed by a postdoctoral research fellowship in cardiovascular biology and physiology. Shortly after joining the faculty at the University of Michigan, she established the Program for Inherited Cardiomyopathies and Arrhythmias, where she served as the Director for 12 years. Dr. Day joined the Penn faculty in July 2019 as Associate Professor of Medicine and Genetics and Director of Translational Research for the Division of Cardiovascular Medicine and the Cardiovascular Institute. She sees patients with genetic heart conditions in the Penn Center for Inherited Cardiac Disease. Her research program primarily focuses on hypertrophic cardiomyopathy (HCM), and integrates basic, translational and clinical science. She has published over 100 manuscripts and lectures nationally and internationally. Dr. Day is chair of the NIH Translational Development and Clinical Studies Study Section, a member of the American Heart Association and American College of Cardiology National Committee for Establishing Treatment Guidelines for Patients with Hypertrophic Cardiomyopathy, past-Chair and current Board of Director member of the Sarnoff Foundation Scientific Committee, an elected member of the American Society of Clinical Investigation, and Associate Editor for The European Heart Journal and JAMA Cardiology.
Matthew Martinez, MD
Dr. Matthew Martinez is Associate Professor of Medicine. He serves as director of Sports Cardiology and Director of Hypertrophic Cardiomyopathy program at Morristown Medical Center/Atlantic Health System. He regularly presents on Sports Cardiology and Hypertrophic cardiomyopathy at national and international meetings. He has been an author of many publication on HCM and Athletes including the 2020 ACC/AHA guidelines for Hypertrophic Cardiomyopathy and Recommendations on Multimodality Cardiovascular Imaging in Young Adult Competitive Athletes. He is the Chair of ACC online “LEARNHCM” platform to educate clinicians about HCM patient care. Dr. Martinez serves as a cardiology consultant for elite and professional athletes including acting as the League cardiologist for Major League Soccer, team cardiologist for the New York Jets and cardiac consultant for the NFL and NHL. He has expertise in advanced cardiac imaging and has led many educational events nationally and internationally on these topics.
Benjamin Levine, MD FACC FACSM
BENJAMIN D. LEVINE M.D. is the founder and Director of the Institute for Exercise and Environmental Medicine (IEEM) at Texas Health Presbyterian Hospital Dallas where he also holds the S. Finley Ewing Chair for Wellness and the Harry S. Moss Heart Chair for Cardiovascular Research. He is Professor of Internal Medicine/Cardiology and Distinguished Professor of Exercise Sciences at the University of Texas Southwestern Medical Center. Dr. Levine earned his B.A. magna cum laude in human biology from Brown University and his M.D. from Harvard Medical School.
Dr. Levine is a renowned sports cardiologist who sees athletes with cardiovascular medical problems from around the world and serves as a consultant to the NCAA, the NHL, the NFL, the USOC, USA Track and Field, and other athletic organizations. He has been a key contributor to the guidelines for the management of athletes with heart disease since 1994.
Dr Levine is a fellow of the American Heart Association for which he is the immediate past chair of the Exercise and Cardiac Rehabilitation Committee, American College of Sports Medicine (ACSM), the Cardiovascular Section of the American Physiological Society and the American College of Cardiology, former VP and member Board of Trustees of ACSM, a member of the Board of Directors of the American Autonomic Society, elected member of the Association of University Cardiologists, and elected member of the prestigious medical society the Association of American Physicians.
Michael Ackerman, MD PhD
Michael J. Ackerman, M.D., Ph.D. is the Windland Smith Rice Cardiovascular Genomics Research Professor and Professor of Medicine, Pediatrics, and Pharmacology at the Mayo Clinic in Rochester, Minnesota. Dr. Ackerman was born and raised in Iowa. He graduated valedictorian from Sheldon High School in 1984, and in 1988, he graduated summa cum laude from Luther College in Decorah, Iowa majoring in chemistry and mathematics. He received his M.D. and Ph.D. degrees from the Mayo Clinic Alix School of Medicine and the Mayo Clinic Graduate School of Biomedical Sciences in 1995 and completed residency (pediatrics) and fellowship (pediatric cardiology) training in the Mayo Clinic Graduate School of Medicine in 2000. He has been a faculty member of Mayo Clinic since July 2000 and has served as President of the Sudden Arrhythmia Death Syndromes (SADS) Foundation since 2006.
As a genetic cardiologist, Dr. Ackerman has published over 600 manuscripts from bench-to-bedside that pertain to most of the sudden death-predisposing genetic heart diseases including long QT syndrome, catecholaminergic polymorphic ventricular tachycardia, and hypertrophic cardiomyopathy and is internationally known for empowering athletes with such genetic heart diseases to return-to-play. In 2010, he was inducted into the American Society of Clinical Investigation, in 2018, he received the Heart Rhythm Society’s Distinguished Scientist Award, and in 2021, he was inducted into the Association of American Physicians. He was named Mayo Clinic’s Distinguished Clinician in 2015 and its Distinguished Investigator in 2021. As Director of Mayo Clinic’s Windland Smith Rice Genetic Heart Rhythm Clinic and its complementary Windland Smith Rice Sudden Death Genomics Laboratory, Dr. Michael Ackerman strives to fulfill the two-fold objective of medical education and biomedical research as stated by Dr. Charles H. Mayo: “to heal the sick and to advance the science.”
Susan Etheridge
Dr. Susan Etheridge is a board-certified pediatric cardiologist and electrophysiologist. Since beginning her tenure in Pediatric Cardiology, her research focus has centered on Long QT Syndrome (LQTS) and other genetic disorders leading to sudden death in the young. She directed local and multi-center collaborative projects concerning LQTS, supraventricular tachycardia and Wolff-Parkinson-White Syndrome and Catecholaminergic Polymorphic Ventricular Tachycardia and hypertrophic cardiomyopathy. Her experience as a pediatric electrophysiologist, a Fellow in the Heart Rhythm Society, past present of the Pediatric and Congenital Arrhythmia Society, member of the America College of Cardiology Electrophysiology Committee and Vice President of the Sudden Arrhythmia Death Foundation underscores her interest in and service to children and adults with arrhythmic disease. Dr. Etheridge created and led the University of Utah Inherited Arrhythmia clinic. This is a collaborative clinic that focuses on children and adults with familial sudden death conditions with input from genetics, adult and pediatric electrophysiology and child psychology. As the Vice President of the SADS Foundation, she is intimately involved with families with these conditions. Her expertise revolves around clinical assessment, phenotype ascertainment and patient management in the context of interpreting genetic data.
Jennifer Conway
Dr. Jennifer Conway is the Director of the Heart Function and Cardiomyopathy Program and the exercise lab for pediatric cardiology patients at the Stollery Children’s Hospital in Alberta, Canada. She is a Professor of Pediatrics at the University of Alberta and past president of the Pediatric Heart Transplant Society. She participates in many international efforts to improve the care of children with heart failure, cardiomyopathies and heart transplantation through the American Heart Association, the International Society of Heart and Lung Transplantation and the ACTION learning network. Her research interests have included understanding cardiovascular risk factors for coronary artery disease in children with hypertrophic cardiomyopathy and promoting exercise in children with congenital and acquired heart disease.
Jonathan Edelson
Dr. Jonathan Edelson is a faculty member at PolicyLab at Children’s Hospital of Philadelphia (CHOP), an assistant professor of pediatrics at the Perelman School of Medicine at the University of Pennsylvania, and a senior fellow in the Leonard Davis Institute of Health Economics. He is a pediatric cardiologist with a clinical focus on heart failure, transplant, mechanical circulatory support and exercise physiology and currently serves as the director of the sports cardiology and the ventricular assist device programs at CHOP. Dr. Edelson’s research focuses on the design and implementation of safe, effective, sustainable, and accessible forms of physical activity in children and adolescents with a wide range of inherited and acquired cardiac diseases.
Peter Dean, MD FACC
Dr Peter Dean, MD, FACC, is an associate professor in the Division of Pediatric Cardiology at the University of Virginia. He serves as a general inpatient and outpatient pediatric cardiologist, medical director of the pediatric exercise stress laboratory, and team cardiologist for UVA Athletics and other surrounding universities. His research interests include sports participation and quality of life in patients with congenital heart disease and with connective tissue disorders. He previously served on the American College of Cardiology’s Sports and Exercise section leadership council.